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Caregiver Resources

According to the National Alliance for Caregiving, more than 65 million people, 29% of the U.S. population, provide care for a chronically ill, disabled or aged family member or friend during any given year and spend an average of 20 hours per week providing care for their loved one. That means that about one in every 3 or 4 of your employees has caregiving responsibilities, a significant work-life issue. If you have a good EAP, your employees should be able to access resources and help - along with help for the stress that caregiving adds to their lives. To commemorate National Family Caregivers Month, we are sharing some resources that we've found helpful and encourage you to share these with your employees.

ShirleyBoard is a free resource that gives you the tools to create your ow online community and to link all the people in your network and all those caring for a loved one. You can centrally store all important caregiving information, such as a patient journal, a list of medications, a directory of doctors, and a calendar. It allows you to give access to friends, family and healthcare professionals – and to establish permissions for what information they can and can't see. It allows you to keep an ongoing record, to access resources and tips, and to network with other caregivers.

BenefitsCheckUp - A service from the National Council on Aging. Many older people need help paying for prescription drugs, health care, utilities and other basic needs. Many are eligible for but not receiving benefits from existing federal, state and local programs. There are many public programs available to seniors in need ranging from heating and energy assistance to prescription savings programs to income supplements. BenefitsCheckUp includes more than 2,000 public and private benefits programs from all 50 states and the District of Columbia.

Program of All-inclusive Care for the Elderly (PACE) is centered around the belief that it is better for the well-being of seniors with chronic care needs and their families to be served in the community whenever possible. PACE serves individuals who are age 55 or older, certified by their state to need nursing home care, are able to live safely in the community at the time of enrollment, and live in a PACE service area. Delivering all needed medical and supportive services, the program is able to provide the entire continuum of care and services to seniors with chronic care needs while maintaining their independence in their homes for as long as possible. Care and services include:

  • Adult day care that offers nursing; physical, occupational and recreational therapies; meals; nutritional counseling; social work and personal care
  • Medical care provided by a PACE physician familiar with the history, needs and preferences of each participant
  • Home health care and personal care
  • All necessary prescription drugs
  • Social services
  • Medical specialists such as audiology, dentistry, optometry, podiatry, and speech therapy
  • Respite care
  • Hospital and nursing home care when necessary

Aging Pro - bills itself as the best one-stop destination for a comprehensive set of caregiving tools, resources, community support information and access to professionals in aging on the Web. It is a resource for caregivers, professionals, and people planning their future.

Family Caregiver Alliance - Founded in 1977, FCA was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers, including the Family Care Navigator with state-by-state help and the National Center on Caregiving, the policy and research center of FCA.

EEOC: Unlawful Disparate Treatment of Workers With Caregiving Responsibilities and Employer Best Practices for Workers with Caregiving Responsibilities

Additional resources:
National Family Caregivers Association
National Association for Homecare and Hospice
Caring for a person with Alzheimer’s disease: Your easy to use guide from the National Institute on Aging
Coping with cancer: For caregivers, family & friends
Miles Away: The Metlife Study of Long-Distance Caregiving
Caregiver depression - symptoms and hope

Prior posts:
Resources for elder caregivers
Employer best practices for caregivers in the workplace
The high cost of caregiving
Caregiver employees are at heightened risk: how employers can help

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